Well, we made it through the bronchoscopy with flying colors! They said it looks wonderful. Yeah!!!!!! She slept all day yesterday, but had been up most of the night worrying about the bronch, so i'm glad she slept. I thought about getting into the chocolates. She couldn't stop me, right? lol Just kdding.
The Dr. on the floor came in this morning and told her she was doing well, her blood count is back up, the potassium is in normal range (it was high) and the kidney function is going back down.
We haven't seen the pulmonologists today, but they are planning on releasing Jennifer probably tomorrow. she still has to have an angiogram, so they said they will try to schedule in the morning and then release her in the afternoon as long as everything goes well.
Then she will see Dr. Budev, the pulmonary transplant Dr., in a week, so next Wed. or Thurs., have a bronchoscopy where they will do a biopsy of the new lungs, and if that looks well, they will release her to go home to West Chester by that Friday. It could possibly be the next Friday, which is ok too. As long as she's ok, I don't want to rush things. We are both looking forward to being home with Ray, Kelly and Cameron though. Back to a normal family life, only much better!!!!!
They keep giving her percocet for pain management, but it knocks her out, they want her to walk....doesn't mix. We will walk this afternoon though, maybe after lunch. She ordered Rascals pizza last night. Had half an Italian hoagie, so still has the other half and a salad left to eat, but did well. They have lost her menu she made out for today's food, so she's not happy about that. After all, the prednisone is kicking in. My arm might start looking good to her. lol
Her weight is still climbing. Hoping it's actual good weight gain. They said it's not ALL fluid, so I know at least she weighs more than she did. She is close to high school weight and that was great.
The Infectious disease Dr. came in and is deciding what to do about her coming in on antibiotics pre-transplant. Whether she needs to continue or not, but said it really is more the donors lungs than hers at this point. We will get an answer on that sometime before leaving, Im assuming.
She is so happy to be able to breathe normally. Just to see the smile on her face, the color back in her cheeks and the pink in her nails! What more could a mother ask for?
We love reading everyone's comments. It sure makes us smile and know how much she is loved, so keep them coming.
We can't get on facebook at the hospital, because the have a block on that here, so don't think we're ignoring you. We will hopefully be able to get on when we get to our residence in Cleveland after hospital dismissal.
Love to all!
Becky
Tuesday, February 24, 2009
Tuesday morning
Posted by Jen Girl at 11:00 AM
Labels: Cleveland, cystic fibrosis, Post-Transplant
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7 comments:
We miss you. I can't believe you are coming home that quick! Jack has been ok but he keeps looking at me like, "Hey, where did you take those 2 nice ladies that feed me?" Then of course, he keeps barking at the poodle in the fireplace!
I will be sure he is completely loved & spoiled until you get back.
Love ya,
Caroline
P.S. You want my contact at Rascals? hee hee
glad to hear the bronch went well. keep up the good work! unbelievable that you will be coming home so soon. looks like we will all have to cancel our Cleveland trips. sooo happy with the good news. hope to see you soon.
love,
pam and jer
I am in awe of all the progress.
this is the best news. I was hoping to make a road trip again..but looks like I will be making a trip to west chester...Beck and Jen you guys
are both warriors..so keep up the fight and get home...
lol teresa
Every one is soo happy to hear you're doing well. We all love you and miss you soo much. Looking forward to seeing you. We will have to celebrate!! Tee hee hee!!
Love you,
the Daleys
Amazing! I can't believe you'll be leaving the hospital as early as tomorrow. Just to think....my mom was in the hospital that long when she had me:-). Looking forward to the West Chester bash.
Love,
Linda
Hello Jennifer,
That is great news!!! Can't wait till you come home! And I can't wait to see that smile in person!! Take care, Love Jill & Kyle
Hey Jen and Becky!
Sounds like everyone had a good weekend and all is well!
Keep up the good work, and will be thinking of you. This blog thing is awesome, it keeps everyone posted. Love ya, computer illiterate Barb
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