Jennifer was finally released from the hospital today! yeah!!!! The fluid is still in the bottom of the lungs, but the Dr's. feel that her body will absorb the fluid once it realizes it shouldn't be there. We are staying at a Residence Inn, south of Cleveland. We have a suite, but had to go up 2 flights of stairs, which was questionable, but Jennifer did ok, with a rest at the landing of the first flight.
I walked beside her, holding her waist and hips, but stopped when she wanted to. We finally made it into the room. It is so nice! Has a living area with tv, gas fireplace, kitchen with table and 4 chairs, frig., stove, dishwasher and microwave. The bedroom on the main floor is where Jennifer will stay. it has a bathroom off the bedroom., and then a bedroom upstairs in the loft with a bathroom there also. There's tv's in each bedroom and living room, with a pull out bed in the couch. The people here are so nice. The manager knows that Jennifer is a lung transplant patient from Cleveland Clinic. She said her twin sister had 3 pacemakers placed from there over the years and she said that is the reason that her sister is alive today. They have said they will clean the room however we want, either with bleach or natural products. It was fine the way it is. Just so nice to see that people really care and are willing to do whatever need be, for another person.
Teresa came up yesterday and stayed and lead us to the hotel this afternoon. She said I was a slow driver. I told her the bumps didn't do well with Jennifer so had to drive slower. We are usually racing on the expressway with each other, so I'm sure she was wondering what happened to me. lol Especially after being in the rear on the way up on Friday, the 13th, heading to get the transplant. She never caught up, but was close!
Jennifer seems ok being out of the hospital, but know she is somewhat afraid. We sat and sorted through her pills tonight before dinner, did her blood pressure, spirometer, but haven't weighed her. The blood pressure cuff runs on 4 AA batteries, but that wasn't told to us. Fortunately, I had the batteries for that, but the scale runs on a 9 volt, so I have to go out for that.
The home care nurse is scheduled to visit here on Saturday, unless they have a cancellation and then she will come on Friday.
This journey is so incredible! Jennifer's not ready to run any marathons yet, but is improving
each day. Her legs are weak, but that will improve with the walking and doing a little exercise. There's very few times I've been speechless in my life, but am in such awe over how well she has done and how intelligent and caring the people are at Cleveland Clinic. We couldn't have asked for better care!
Ray, Cameron, and some of Jennifer's girlfriends are coming up this weekend to visit with her. That will be nice for her. I hope that Kelly comes also. It would be so nice to be a family again, if only for the weekend. She is a typical teenager though and not sure what her social calendar has on it. She wants me to come home this weekend, but still new for all of us with Jennifer being out of the hospital and just don't feel overly comfortable leaving her yet. Things will be back to somewhat a normal life again soon.
We will update everyone after a night of good rest!
Love to all!
Becky and Jennifer
Thursday, February 26, 2009
Thursday Evening
Posted by Jen Girl at 9:17 PM
Labels: Cleveland, cystic fibrosis, Post-Transplant
Subscribe to:
Post Comments (Atom)
6 comments:
Yeah! That is great news! I've been thinking about you guys all day and hoping that Jen would be released. Thanks for the daily updates! Keep up the good work, Jen!
That last comment was from Jen Steiner... sorry it sent before I could type my last name!!!
great news on the discharge from the hospital!! have a fun weekend.
Love,
Pam and Jer
congrats on getting out of the hospital,but don't overdue.Just to keep you in tune with the hospital I will call you every 2 hours to wake you up to see if you are okay. Heal faet and heal well we are waiting for you and we all love you.
George and Jeanne
Computer illiterate Aunt Barb here!
Have been reading all your past blogs (since I don't have Auntie M here to do it for me). So wonderful to here you were released from the hospital yesterday. Think of you everyday in our prayers! No appletinis yet!
Love ya, Aunt Barb
Count down to the party ! We are all so glad to hear you are out of the hospital Jen! The girls read your's (and Becky's) blog with me everyday. We were all screaming and jumping up and down ! When you come home it will definitely be limo time ! : )
Ann
Post a Comment